Our Vision for Research and Data Sharing
Trillium Gift of Life Network (TGLN) is committed to ensuring its resources are adding value to the current and continually developing research initiatives across the province, within Canada, and internationally, while at the same time maintaining a direct focus on the mission mandated to us by the Government of Ontario – saving and enhancing more lives through the gift of organ and tissue donation and transplantation.
Like all patient-focused organizations, TGLN cannot afford to merely sustain current practices. To do so would risk a plateau. We need to innovate – in registration, consent, donation, and transplantation. It is only through participation in scientifically founded and evidence-based research, combined with an agility to mobilize and implement knowledge transfer that TGLN will further progress on achieving its mission.
In addition, continued data sharing with our external partners will support education for health care professionals and facilitate both promotion and advancement of donation and transplantation best practices in Ontario.
Submitting Research Requests
A Research Request is any request related to a research project. This includes requests for data, tissue/organ/blood samples, clinical interventions or for consultations. If you would like to submit a research request, please ensure the following requirements are met:
If your request does not meet the above requirements you may still be able to submit a data request to TGLN:
Additional Guidelines for Submitting Research Requests
Notice of Acceptance of Research Requests
Depending on the nature of the request, applications will be reviewed and assessed by TGLN’s Research and Data Request Committee, where appropriate. Notice of Acceptance or Notice of Application Status (e.g. if more information is required) will be within a maximum of four (4) weeks from the date the application is submitted. Requests will be evaluated based on the following criteria:
Requirements of Successful Research Requestors/Principal Investigators
Requestors/Principal Investigators will be required to:
Authorship/Non-Author Contributions for Research Requests
Acknowledgement of TGLN’s time and resources for all requests is appropriate. A discussion about authorship should occur for all requests that require more from TGLN than simple data acquisition. TGLN encourages Requestors/Principal Investigators to follow the International Committee of Medical Journal Editors (ICMJE) recommendations for defining the role of authors and contributors.
The ICMJE recommends the following four criteria be used to determine authorship:
Further, though contributors who do not meet all of the above criteria should not be listed as authors, they should be acknowledged. [i]
Suggested statements for acknowledgement include:
Cost Recovery Considerations*
Cost recovery considerations apply to both research requests for data and research requests for specimens.
To ensure TGLN’s ability to support its research partners is sustainable, a cost recovery process is in place to recoup incremental costs. The cost recovery process was developed in accordance with the following principles: simple to administer; fair, reasonable, and transparent.
TGLN will charge a one-time cost recovery fee of $600 for all requests. If specimens are required, there will be additional fees to cover the cost of surgical supplies required to recover the specimens. At the time of receiving a request for data/specimens for research, TGLN will inform Requestors of the estimated fee(s) associated with their request. The final amount will be determined once the request has been finalized.
If you have any questions about the cost recovery model please contact the Program Manager, Research at firstname.lastname@example.org.
*The revised fee structure is effective as of 2019-04-01
 International Committee of Medical Journal Editors. 2017. “Defining the Role of Authors and Contributors.” Accessed February 23, 2017. http://www.icmje.org/recommendations/browse/roles-and-responsibilities/defining-the-role-of-authors-and-contributors.html.